My MS Story – evie writes

Do I Really Need Accessible?

“Am I overreacting?” I ask, as I find myself questioning the suitability of the duplex style honeymoon suite at a potential wedding venue. I can still walk up and down stairs. There’s a good chance I’ll still be able to walk up and down stairs in 18 months’ time. Is my unease at the prospectContinue reading “Do I Really Need Accessible?”

A Utopian Ideal

Someone once told me of their sadness at the fact they now had to take a shopping list to the supermarket, otherwise they were guaranteed to forget something. I’ll be blunt; I didn’t know how to respond. My heart was filled with sorrow for this person, not because of their list requirement, but because ofContinue reading “A Utopian Ideal”

The Most Boring Job I Never Asked For

I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go. I call the clinical homecare number; “Oh, how strange. Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital. I’ll chase theContinue reading “The Most Boring Job I Never Asked For”

The Curious Thing About Time and MS

“So, what do you do?” The question that makes my toes curl and my heart beat a little faster. I wish I had the presence of mind, and the courage, to say; “Well, I do many things. I write a blog, I volunteer as a ‘buddy’ providing support to those newly diagnosed with MS, IContinue reading “The Curious Thing About Time and MS”

My Body Is My Own

I’m sure we’ve all been in medical settings feeling vulnerable and exposed, poked and prodded; feeling more like an anatomical curio at the mercy of a doctor and her medical student than a living, breathing, rounded person with likes and dislikes of our own. I can remember that feeling, but I don’t really experience itContinue reading “My Body Is My Own”

On Grief, Joy, Loss and Hope

There’s a bin bag full of high-heels in the boot of my car. They’re the first to fall, the first goodbye, the first little chip away at what would, if it weren’t for MS, otherwise still be a part of my identity. The first casualty of my progressive illness. The first real, tangible; “I amContinue reading “On Grief, Joy, Loss and Hope”