My MS Story

Twenty-nine

On the eve of my 29th birthday I find myself alone and feeling reflective. At what age do birthdays begin to elicit such a response, I wonder? Certainly in my early twenties getting older was merely an excuse to celebrate. Now though, at the ripe old age of not-even-thirty-yet, at 17.58 on a Wednesday evening,…… Continue reading Twenty-nine

The Blasé Balance

Darkness crept in from the outer corner of my eye until I couldn’t see anything but a washed-out blur of foggy haze. I wasn’t too concerned. I figured out a way of applying my black eyeliner, despite a lack of vision – a skill that I am still most appreciative of – and everything else…… Continue reading The Blasé Balance

The Hole In The Wall

I feel like I’m losing so much of myself. Like I’m slowly being chipped away from the inside out, until one day I won’t even be me. There won’t be any of me. I can feel Isaac’s presence as he watches me from the doorway, hear the floorboards creak as his weight shifts gently from…… Continue reading The Hole In The Wall

Do I Really Need Accessible?

“Am I overreacting?” I ask, as I find myself questioning the suitability of the duplex style honeymoon suite at a potential wedding venue. I can still walk up and down stairs. There’s a good chance I’ll still be able to walk up and down stairs in 18 months’ time. Is my unease at the prospect…… Continue reading Do I Really Need Accessible?

A Utopian Ideal

Someone once told me of their sadness at the fact they now had to take a shopping list to the supermarket, otherwise they were guaranteed to forget something. I’ll be blunt; I didn’t know how to respond. My heart was filled with sorrow for this person, not because of their list requirement, but because of…… Continue reading A Utopian Ideal

The Most Boring Job I Never Asked For

I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go. I call the clinical homecare number; “Oh, how strange. Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital. I’ll chase the…… Continue reading The Most Boring Job I Never Asked For