I feel like I’m losing so much of myself. Like I’m slowly being chipped away from the inside out, until one day I won’t even be me. There won’t be any of me. I can feel Isaac’s presence as he watches me from the doorway, hear the floorboards creak as his weight shifts gently from…… Continue reading The Hole In The Wall
Not sure what to get your chronically ill friend or family member for Christmas? Here are a few of my suggestions: The gift of time. When you live with a chronic illness things like keeping on top of the housework, or feeding yourself, can take a significant hit. In my humble opinion, the gift of…… Continue reading A Chronic Illness Gift List
“Am I overreacting?” I ask, as I find myself questioning the suitability of the duplex style honeymoon suite at a potential wedding venue. I can still walk up and down stairs. There’s a good chance I’ll still be able to walk up and down stairs in 18 months’ time. Is my unease at the prospect…… Continue reading Do I Really Need Accessible?
As lockdown began to lift we saw measures being implemented to ensure physical distancing rules could be adhered to with more ease – such measures have all too frequently involved the commandeering of disabled parking spaces and accessible entrances. One way systems have rendered access either impossible or incredibly difficult for those of us with…… Continue reading Am I Welcome Here?
Someone once told me of their sadness at the fact they now had to take a shopping list to the supermarket, otherwise they were guaranteed to forget something. I’ll be blunt; I didn’t know how to respond. My heart was filled with sorrow for this person, not because of their list requirement, but because of…… Continue reading A Utopian Ideal
I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go. I call the clinical homecare number; “Oh, how strange. Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital. I’ll chase the…… Continue reading The Most Boring Job I Never Asked For