Twenty-nine

On the eve of my 29th birthday I find myself alone and feeling reflective.  At what age do birthdays begin to elicit such a response, I wonder?  Certainly in my early twenties getting older was merely an excuse to celebrate. Now though, at the ripe old age of not-even-thirty-yet, at 17.58 on a Wednesday evening,…… Continue reading Twenty-nine

The Blasé Balance

Darkness crept in from the outer corner of my eye until I couldn’t see anything but a washed-out blur of foggy haze.  I wasn’t too concerned.  I figured out a way of applying my black eyeliner, despite a lack of vision – a skill that I am still most appreciative of – and everything else…… Continue reading The Blasé Balance

A Chronic Illness Gift List

Not sure what to get your chronically ill friend or family member for Christmas?  Here are a few of my suggestions: The gift of time.  When you live with a chronic illness things like keeping on top of the housework, or feeding yourself, can take a significant hit. In my humble opinion, the gift of…… Continue reading A Chronic Illness Gift List

The Most Boring Job I Never Asked For

I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go.  I call the clinical homecare number; “Oh, how strange.  Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital.  I’ll chase the…… Continue reading The Most Boring Job I Never Asked For

The Curious Thing About Time and MS

“So, what do you do?” The question that makes my toes curl and my heart beat a little faster. I wish I had the presence of mind, and the courage, to say; “Well, I do many things. I write a blog, I volunteer as a ‘buddy’ providing support to those newly diagnosed with MS, I…… Continue reading The Curious Thing About Time and MS

My Body Is My Own

I’m sure we’ve all been in medical settings feeling vulnerable and exposed, poked and prodded; feeling more like an anatomical curio at the mercy of a doctor and her medical student than a living, breathing, rounded person with likes and dislikes of our own.  I can remember that feeling, but I don’t really experience it…… Continue reading My Body Is My Own