Dead Time: Notes From My Diary

Dots separating passages signify a long break in writing due to being pulled back into a fatigue-fog, with pen held poised ready to begin again as soon as function returned. Thursday Night Searching for words, glorious words, at midnight, in bed. With fizzing feet, and aching… everything, and a blood-heavy belly. Hunting for words. For…… Continue reading Dead Time: Notes From My Diary

Twenty-nine

On the eve of my 29th birthday I find myself alone and feeling reflective.  At what age do birthdays begin to elicit such a response, I wonder?  Certainly in my early twenties getting older was merely an excuse to celebrate. Now though, at the ripe old age of not-even-thirty-yet, at 17.58 on a Wednesday evening,…… Continue reading Twenty-nine

The Most Boring Job I Never Asked For

I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go.  I call the clinical homecare number; “Oh, how strange.  Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital.  I’ll chase the…… Continue reading The Most Boring Job I Never Asked For

The Curious Thing About Time and MS

“So, what do you do?” The question that makes my toes curl and my heart beat a little faster. I wish I had the presence of mind, and the courage, to say; “Well, I do many things. I write a blog, I volunteer as a ‘buddy’ providing support to those newly diagnosed with MS, I…… Continue reading The Curious Thing About Time and MS

My Body Is My Own

I’m sure we’ve all been in medical settings feeling vulnerable and exposed, poked and prodded; feeling more like an anatomical curio at the mercy of a doctor and her medical student than a living, breathing, rounded person with likes and dislikes of our own.  I can remember that feeling, but I don’t really experience it…… Continue reading My Body Is My Own