Twenty-nine

On the eve of my 29th birthday I find myself alone and feeling reflective.  At what age do birthdays begin to elicit such a response, I wonder?  Certainly in my early twenties getting older was merely an excuse to celebrate. Now though, at the ripe old age of not-even-thirty-yet, at 17.58 on a Wednesday evening,…… Continue reading Twenty-nine

The Most Boring Job I Never Asked For

I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go.  I call the clinical homecare number; “Oh, how strange.  Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital.  I’ll chase the…… Continue reading The Most Boring Job I Never Asked For

The Curious Thing About Time and MS

“So, what do you do?” The question that makes my toes curl and my heart beat a little faster. I wish I had the presence of mind, and the courage, to say; “Well, I do many things. I write a blog, I volunteer as a ‘buddy’ providing support to those newly diagnosed with MS, I…… Continue reading The Curious Thing About Time and MS

My Body Is My Own

I’m sure we’ve all been in medical settings feeling vulnerable and exposed, poked and prodded; feeling more like an anatomical curio at the mercy of a doctor and her medical student than a living, breathing, rounded person with likes and dislikes of our own.  I can remember that feeling, but I don’t really experience it…… Continue reading My Body Is My Own

On Grief, Joy, Loss and Hope

There’s a bin bag full of high-heels in the boot of my car.  They’re the first to fall, the first goodbye, the first little chip away at what would, if it weren’t for MS, otherwise still be a part of my identity.  The first casualty of my progressive illness.  The first real, tangible; “I am…… Continue reading On Grief, Joy, Loss and Hope

MS Awareness Week 2020: 7 “Hacks” For Living With MS

It’s MS awareness week, and while a certain pandemic has taken the spotlight this year, MS stops for no virus (in fact, the two make a disastrous duo). When I was trying to come up with a subject for an awareness week post, my first thought was to gather together photos of me from 2009…… Continue reading MS Awareness Week 2020: 7 “Hacks” For Living With MS