“So, what do you do?” The question that makes my toes curl and my heart beat a little faster. I wish I had the presence of mind, and the courage, to say; “Well, I do many things. I write a blog, I volunteer as a ‘buddy’ providing support to those newly diagnosed with MS, I…… Continue reading The Curious Thing About Time and MS
I’m sure we’ve all been in medical settings feeling vulnerable and exposed, poked and prodded; feeling more like an anatomical curio at the mercy of a doctor and her medical student than a living, breathing, rounded person with likes and dislikes of our own. I can remember that feeling, but I don’t really experience it…… Continue reading My Body Is My Own
There’s a bin bag full of high-heels in the boot of my car. They’re the first to fall, the first goodbye, the first little chip away at what would, if it weren’t for MS, otherwise still be a part of my identity. The first casualty of my progressive illness. The first real, tangible; “I am…… Continue reading On Grief, Joy, Loss and Hope
It’s MS awareness week, and while a certain pandemic has taken the spotlight this year, MS stops for no virus (in fact, the two make a disastrous duo). When I was trying to come up with a subject for an awareness week post, my first thought was to gather together photos of me from 2009…… Continue reading MS Awareness Week 2020: 7 “Hacks” For Living With MS
First of all I’d like to point out that MS is sometimes referred to as the “snowflake disease”, because no two people with MS will experience it the same. As the damage occurs anywhere in the brain, and down the spinal cord, symptoms vary greatly from person to person. I’m pointing this out because in…… Continue reading Invisible
“What’s it like to have MS?” I’m sure many of my fellow PwMS (people with MS) would readily be able to answer that innocuous question. They would be able to talk about the impact that their symptoms have on their day-to-day life, the changes that have taken place since their diagnosis, how a life with…… Continue reading What’s It Like To Have MS?