Multiple Sclerosis

Dead Time: Notes From My Diary

Dots separating passages signify a long break in writing due to being pulled back into a fatigue-fog, with pen held poised ready to begin again as soon as function returned. Thursday Night Searching for words, glorious words, at midnight, in bed. With fizzing feet, and aching… everything, and a blood-heavy belly. Hunting for words. For…… Continue reading Dead Time: Notes From My Diary

Twenty-nine

On the eve of my 29th birthday I find myself alone and feeling reflective. At what age do birthdays begin to elicit such a response, I wonder? Certainly in my early twenties getting older was merely an excuse to celebrate. Now though, at the ripe old age of not-even-thirty-yet, at 17.58 on a Wednesday evening,…… Continue reading Twenty-nine

The Blasé Balance

Darkness crept in from the outer corner of my eye until I couldn’t see anything but a washed-out blur of foggy haze. I wasn’t too concerned. I figured out a way of applying my black eyeliner, despite a lack of vision – a skill that I am still most appreciative of – and everything else…… Continue reading The Blasé Balance

The Hole In The Wall

I feel like I’m losing so much of myself. Like I’m slowly being chipped away from the inside out, until one day I won’t even be me. There won’t be any of me. I can feel Isaac’s presence as he watches me from the doorway, hear the floorboards creak as his weight shifts gently from…… Continue reading The Hole In The Wall

A Chronic Illness Gift List

Not sure what to get your chronically ill friend or family member for Christmas? Here are a few of my suggestions: The gift of time. When you live with a chronic illness things like keeping on top of the housework, or feeding yourself, can take a significant hit. In my humble opinion, the gift of…… Continue reading A Chronic Illness Gift List

The Most Boring Job I Never Asked For

I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go. I call the clinical homecare number; “Oh, how strange. Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital. I’ll chase the…… Continue reading The Most Boring Job I Never Asked For