On the eve of my 29th birthday I find myself alone and feeling reflective. At what age do birthdays begin to elicit such a response, I wonder? Certainly in my early twenties getting older was merely an excuse to celebrate. Now though, at the ripe old age of not-even-thirty-yet, at 17.58 on a Wednesday evening,…… Continue reading Twenty-nine
Tag: Multiple Sclerosis
The Blasé Balance
Darkness crept in from the outer corner of my eye until I couldn’t see anything but a washed-out blur of foggy haze. I wasn’t too concerned. I figured out a way of applying my black eyeliner, despite a lack of vision – a skill that I am still most appreciative of – and everything else…… Continue reading The Blasé Balance
The Hole In The Wall
I feel like I’m losing so much of myself. Like I’m slowly being chipped away from the inside out, until one day I won’t even be me. There won’t be any of me. I can feel Isaac’s presence as he watches me from the doorway, hear the floorboards creak as his weight shifts gently from…… Continue reading The Hole In The Wall
A Chronic Illness Gift List
Not sure what to get your chronically ill friend or family member for Christmas? Here are a few of my suggestions: The gift of time. When you live with a chronic illness things like keeping on top of the housework, or feeding yourself, can take a significant hit. In my humble opinion, the gift of…… Continue reading A Chronic Illness Gift List
The Most Boring Job I Never Asked For
I have 15 days of my DMT left, and I usually receive my next delivery date when I have just over 3 weeks to go. I call the clinical homecare number; “Oh, how strange. Let me look into that for you… ah, it seems we haven’t received your prescription from the hospital. I’ll chase the…… Continue reading The Most Boring Job I Never Asked For
The Curious Thing About Time and MS
“So, what do you do?” The question that makes my toes curl and my heart beat a little faster. I wish I had the presence of mind, and the courage, to say; “Well, I do many things. I write a blog, I volunteer as a ‘buddy’ providing support to those newly diagnosed with MS, I…… Continue reading The Curious Thing About Time and MS
